BLAST FROM THE PAST:
A mere two years after a double mastectomy, I’m facing another medical crisis. I’m not handling it gracefully. Too many crises. Dozens of surgeries. I can’t bore you with details; I have, thankfully, forgotten them.
I’ve spent more time in the hospital than most interns. I’m a professional patient with the scars to prove it. When I die, they should stuff me. Put me in some kind of museum proving with enough medical attention, even the totally unfit can survive. Each doctor who redesigned some portion of me can tattoo his signature along the appropriate scar, assuming all the doctors are still alive. Probably they aren’t because I started my career on the wrong side of medicine while still a teenager and apparently am not due for retirement anytime soon.
I need a new mitral valve. I used to joke and laugh, saying the only major system in my body that continues to work is my heart. I laughed too soon. Probably jinxed myself.
I go into each surgery with fear and resignation. I know how I’m going to feel when I wake up from the anaesthesia. I will hurt. I will be sick and disoriented. I will realize I must have survived because I’m aware how totally miserable I am. Again.
Last time I woke up and the first thing I did was look down at my chest to see if I had a semblance of breasts. I did. Lumpy, not flat. Though I knew they weren’t original equipment, I was comforted by the familiarity of the landscape. With all the pain, drains and anger at my body for betraying me, it was nice to know I would at least appear — on the surface — female.
That was when I said: “Never again. I’m never going through this again.”
I should just shut up. How stupid am I? I can’t remember how many times I’ve woken from that weird deathlike anaesthesia sleep and have fought my way back up to the light. Each time, just a little weaker, a bit less sure of the future — but alive. Hanging on.
It’s too soon. I’m not ready. Maybe this time the magic won’t work. My first husband died following complications of mitral valve replacement surgery. I watched him die. After the surgical accident that killed his brain, he remained technically alive, but in a vegetative state for 9 long months. I took care of something that looked like him, but whose eyes were empty. When finally he passed completely, I and the rest of his friends gratefully wished him well on a journey he should have taken nearly a year before.
Probably no surprise that this particular surgery holds a special terror for me.
Less than two years since I vowed “Never again,” again has come. I suppose I’ve already made the choice to let them fix me, or try anyhow (does “or die trying” sound too ghoulish?). The alternative — slowly dying while my heart becomes less and less able to pump blood — doesn’t sound attractive. An attractive option does not seem to be available. But, there’s no advantage in waiting. I won’t get younger or healthier. The older I get, the more dangerous surgery is.
I gave myself a little gift of time. I put off my appointment with the surgeon until the beginning of September. I need to get my head into a better space, to settle down emotionally. A few weeks of denial before I tackle another scary reality.
So for the next three weeks If you ask me, I will tell you. I’m just fine. Thanks for asking.
Today is Jonas Salk’s birthday. If he were alive, he would be 100 today. But conquering polio was not only about Dr. Salk.
April 3, 2012
In the end, both Albert Sabin and Jonas Salk could rightfully claim credit for one of humanity’s greatest accomplishments—the near-eradication of polio in the 20th century. And yet debate still echoes over whose method is best suited for the mass vaccination needed to finish the job: Salk’s injected, dead-virus vaccine or Sabin’s oral, live-virus version
In the first half of the 20th century, Americans lived in fear of the incurable paralytic poliomyelitis (polio) disease, which they barely understood and knew not how to contain. That the disease led to some kind of infection in the central nervous system that crippled so many children, and even a president (Franklin D. Roosevelt) was alarming enough.
But the psychological trauma that followed a neighborhood outbreak resonated. Under the mistaken belief that poor sanitary conditions during the “polio season” of summer increased exposure to the virus, people resorted to measures that had been used to combat the spread of influenza or the plague. Areas were quarantined, schools and movie theaters were closed, windows were sealed shut in the heat of summer, public swimming pools were abandoned, and draft inductions were suspended.
Worse, many hospitals refused to admit patients who were believed to have contracted polio, and the afflicted were forced to rely on home care by doctors and nurses who could do little more than fit children for braces and crutches. In its early stages, polio paralyzed some patients’ chest muscles; if they were fortunate, they would be placed in an “iron lung,” a tank respirator with vacuum pumps pressurized to pull air in and out of the lungs. The iron lungs saved lives, but became an intimidating visual reminder of polio’s often devastating effects.
The World Series starts tonight! In your own life, what would be the equivalent of a walk-off home run? (For the baseball-averse, that’s a last-minute, back-against-the-wall play that guarantees a dramatic victory.)
We are baseball fans, so when you mention baseball and walk-off home run in one breath, David Ortiz rises before my eyes. I know the Sox aren’t in it this year, but it’s been an interesting baseball season with last year’s first place Sox become this year’s solidly last place Sox. How did they do that? How do you take a winning team and become the biggest losers in just one year? Without major lineup changes or something weird happening with the owners? I don’t get it.
Back to earth. At this point, my walk-off home run would be a multi-faceted project involved a magic remedy to alleviate arthritis, regenerate missing body parts and internal organs, and winning a big payout on a lottery ticket which I suppose I’d to actually buy, something I keep forgetting do. I used to buy tickets, but during the past year, I never seem to have cash when I am someplace that sells tickets.
These days, I’d be a happy camper if I could get a night’s sleep and wake free from pain. One day a week. To have the calcification of my spine stop getting worse, even if it won’t get better. To have enough money to buy an all-wheel drive vehicle to get me out of the driveway when it snows.
Mind you, I’m not unhappy. Despite everything, I find life engaging, entertaining, amusing, satisfying. Fun. I’ve had to find new things to enjoy, but everyone has to adapt. We change, the world changes. Unless you want to be one of the people who sits around griping about the “good old days” and how nothing is as like it used to be, we all have to find new stuff to enjoy and new ways to do it. It merely takes some determination … and creativity.
I was very organized. I’ve wanted to get over to River Bend for a few weeks, but life kept taking us in other directions. Today, though, I knew we’d make it because we needed to go to CVS … and it’s just around the corner from the farm. It’s flu shot time. Last year, we […]
EPISODE: Need to Know (2012) – SHORT SYNOPSIS:
Alan Katzenbach, a lawyer, waits for Gibbs with his client, a chief petty officer named Leland Wiley. Wiley was busted for drugs and wants to trade his info — which he says is about national security. It concerns Agah Bayar, the arms dealer. Gibbs is interested. Wiley comes over to talk, but grabs his heart and drops to the ground.
Gibbs comes for the update from Ducky. Turns out, Wiley had top security clearance and his workstation is locked down. They haven’t been able to connect him to Bayar yet.
Abby calls Gibbs to the lab. She tells him Wiley’s pacemaker was linked into a computer to monitor it. Someone hacked in and jacked his heart rate up to 400 beats per minute.
“Somebody murdered Wiley by remote control,” she says.
What does this have to do with me?
Well, glad you asked. This episode so intrigued the heart surgery team at Beth Israel Deaconess in Boston (where I had all that heart surgery last March), that they decided to find out if it really could be done. One of the people that performed the experiment was my surgeon.
They did it. My surgeon did point out as far as they could tell, to actually hack a pacemaker you had to be no more than a couple of feet from it. Nonetheless, they made the manufacturer change the programming.
In theory, nobody can hack my pacemaker.
I find this comforting. Garry finds it disturbing and I suppose I can see where he’s coming from. He doesn’t like thinking about the mechanical and electronic stuff that keeps me alive. It would creep me out too, but I’m a bit of a geek.
I find the technology sufficiently interesting to overcome its inherent creepiness. It is creepy. However, it doesn’t matter. No matter how I feel about it, I’ve got this thing in my chest. It keeps my heart beating. If my heart beat on its own, I wouldn’t need the pacemaker.
Every time I go for a pacemaker checkup, they use a little machine and briefly stop the pacemaker to see if my heart will beat without it. My heart stops beating. Talk about creepy. It is a very unpleasant — and indescribable — sensation. Anyone with a pacemaker knows what I mean.
The blue tooth remote functions still work. They are (in theory) more secure than they were a couple of years ago, before the NCIS episode aired and the guys got curious about it. Remote functionality is important. After all, I might need a tune-up. Blue tooth lets my doctor access my pacemaker from … how far? I don’t actually know. A considerable distance, whatever that is.
Garry — again — doesn’t want to know about it. I pointed out if someone murders me, this is potentially important evidence. He would still rather not think about it.
So there we are. Too creepy?
I can feel my pacemaker. It sits on my left shoulder. The outline is visible. I can feel the wires, the connections through my skin. I find it impossible to ignore. I might as well find it interesting. It’s part of me, after all.
Warning: This is a rerun — with editing — but it so precisely fits the requirements of today’s Daily Prompt: Discussion Enders, I could not resists doing a little revision and posting it. I quite like this little post. It makes me laugh every time I read it so maybe you will laugh too. We all need a laugh.
As the years have crept by, I have given up a lot of stuff, most of which (it turns out), I didn’t need in the first place. I gave up worrying. I gave up working. I gave up on the lottery, even though I still occasionally buy a ticket (just in case).
I gave up wanting a new car, expecting old friends to call (some of them don’t remember me any more — some don’t remember themselves). I’ve stopped hoping Hollywood will make movies I like, though occasionally they release something I love (like “Quartet,” a movie Dustin Hoffman directed in 2012). I’ve stopped trying to adopt new music and most new television shows.
I’ve renounced trying to figure out what’s going on with the Red Sox.
Some stuff gave me up. Some people gave up on me Other things, I gave up more or less voluntarily. In the end it works out to the same result.
When anyone asked me how or why I have given up whatever it was, I tell them it was for religious reasons.
No one ever asks me what I mean by that. But just so you know, here’s my secret … obviously a secret no more …
I don’t mean anything at all by it. It’s just a way to end a conversation. No one wants to offend me by asking for the details of my religious beliefs. Who knows? They might turn out to be embarrassing or merely bizarre. Thus my all-purpose answer to everyone is “on religious grounds,” “for religious reasons,” or “my spiritual adviser required it.”
What power these words hold. They can make pretty much any conversation vanish without having to tell someone to shut up. It works on everyone except those who really know me. They will raise one or more eyebrows, and fall over laughing.
It’s very similar to (but different than) my all-purpose answer to “How are you?” With the biggest, broadest, fake smile I can muster and with heartfelt enthusiasm, I say: “I’m FINE!” 99.9% of the time, this does the job. Give it a test drive yourself. If you can’t dazzle them with brilliance, baffle them with bullshit.
Because I’m fine. For religious reasons.
As the years have crept by, I have given up a lot of stuff, most of which (it turns out), I didn’t need in the first place.
I gave up worrying. I gave up working. I gave up on the lottery, even though I still occasionally buy a ticket (just in case).
I gave up wanting a new car, expecting old friends to call (some of them don’t remember me any more — some don’t remember themselves). I’ve stopped hoping Hollywood will produce movies I like, though sometimes, much to my delight and surprise, they release something I like a lot (remind me to tell you about “Quartet,” the movie Dustin Hoffman directed last year). I’ve stopped trying to like new music and most television shows.
Some stuff gave me up. Other things I gave up voluntarily, but in the end it comes out the same.
When anyone asked me how or why I have given up whatever it was, I tell them it was on religious grounds.
No one has yet asked me what I mean by that. But just so you, my faithful readers, know the secret …
I don’t mean anything at all by it. It’s just a way to end a conversation. Since no one wants to offend me by asking about my religious beliefs, I can make pretty much any conversation go away without having to tell someone to shut up. It works on everyone except those who really know me. They will raise one or more eyebrows, and fall over laughing.
It’s very similar to (but different than) my all-purpose answer to “How are you?” With the biggest, broadest, fake smile I can muster and with heartfelt enthusiasm, I say: “I’m FINE!”
99.9% of the time, this does the job. Give it a test drive yourself. If you can’t dazzle them with brilliance, baffle them with bullshit.
I’m fine. For religious reasons.