SERENDIPITY

Marilyn Armstrong — Seeking Intelligent Life on Earth


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I’m an apple, Mom was my tree.

It occurred to me one day I really needed to see the spine doctor. When you have chronic pain, you learn to ignore it most of the time. Unless you want to wind up a pill addict, it’s the only option. It’s not being brave. It’s an entirely practical decision. Do I want to keep living? Walking? Participating? Then I have to deal with what I have to deal with. That’s the way it goes. Oh well.

Sometime, when I was in my mid-twenties, I was doing my mother’s hair. I liked fixing her hair. It was easy to style, thick, silver and just a bit wavy. I asked her to turn her head to the right, and she did. When I asked her to turn the other way, she said “I can’t.”

“You can’t? Why not?”

“Because my head won’t turn that way.”

That seemed a curious answer. “What do you  mean by that?”

“My neck is stiff.”

“Um, mom? How long has it been like this?”

She thought for a while. “Fifteen years? Something like that.”

That stopped me. Fifteen years? “Have you seen anyone about it?”

“No,” she said. “I figured I was just getting old.”

At the time, I thought this was totally bizarre. It turned out, she had entirely treatable (but advanced) tendonitis and it got better. She hated doctors.

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Time has marched on and I’m older than my mother was then. I totally relate to her response. When I called the doctor for an appointment, I discovered the last time I saw him was six years ago. To be fair, I’ve had a few medical crises since then and I got distracted. Besides, I know what’s wrong with my back. It isn’t going to get better or go away. It isn’t going to kill me either. I’ve lived with it most of my life. I’m used to it and generally ignore it. Recently, though I’m having trouble walking, even on flat surfaces and going up and down stairs is hard. My legs don’t seem to want to support me. It crossed my mind that there might be something that could be done to improve it without major reconstruction.

My doctor is wonderful. The best. The only doctor who can look at my spine, not gasp with horror and immediately decide I need to be rebuilt with screws, pins, and bolts. He’s a minimalist, medically speaking and I like that.

So I made an appointment and I got lucky, because there was a cancellation in December. It usually takes five or six months to get in to see him. He’s the king of spines in Boston, maybe in the entire country. I would have willingly waited the six months if I had to. Of course, as soon as I made the appointment, I had to make another appointment because I need new films of my spine. I also haven’t had a CT scan or MRI in six years and he isn’t going to be able to do much without new films.

I wondered how come I hadn’t processed the fact I can’t walk properly? I suppose I wasn’t paying attention. Too busy ignoring the pain. I don’t always know I’m doing it, but I was being my mother.

She taught me to be stalwart, a Spartan. She told me she didn’t use Novocaine when she got her teeth worked on. I asked her why not and she said “Pain is good for your character.” She meant it. I grew up believing showing pain or giving in to it was a sign of weakness. To a degree it serves me well, but sometimes it’s dangerous. If you ignore the wrong stuff,  they can kill you. One needs a sense of balance, but it isn’t so easy to find.

Watching the documentary on Ethel Kennedy last night reminded me of my mother. Mom was an athlete and I’m sure she always wondered how she have wound up with such a klutzy daughter. She had been a good tennis player. She rode horses, she played ice hockey. She went bob sledding. She painted, sculpted, designed and made her own clothing. She also never got past seventh grade, so she made up for it by reading everything. She had a truly voracious appetite for life and knowledge.

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After a radical mastectomy, she couldn’t play tennis anymore, so she played a ferocious game of ping-pong.

She played savagely. She served so hard it was more like a bullet than a ping-pong ball. As a family, we vacationed in dinky little resorts in the Catskills where there was no entertainment. The one thing they always had was a ping-pong table. So I played against my mother.

She didn’t believe in any of that “let the kid win” stuff. She was a competitor. You won or you lost. Trying hard was irrelevant because she expected nothing less. She slaughtered me. As I got older, I played better and but she always beat me. She told me she was giving me an advantage by playing with her left hand. I knew she wrote with her right hand, so I assumed that she was a rightie. Until the  day my father told me she had always played tennis with her left hand. My mother was psyching me out. Her own daughter.

I still never beat her, but I beat everyone else.

From her, I got a gritty determination to never give up, to do everything as well as it could be done, or at least as well as I could do it. It turns out winning isn’t everything, but I didn’t learn that until I’d already missed a lot. Late in life, I realized I don’t have to be the best. Playing the game because you enjoy it is worth something too. Another lesson learned a bit too late.

The older I get, the more I remind me of my mother.

We all miss so many things. Some intentionally, others accidentally. Sometimes, I miss things accidentally because I’m avoiding other things intentionally. One thing leads to the other.

I wonder what else I’m missing? I know, on this Mother’s day, that I’m definitely missing Mom. I have so much to tell her.


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Ouch!

I don’t want this to sound as if I think I’m special because I deal with pain. I realize I’ve got plenty of company. It’s just that sometimes, I feel like I’m in an over-crowded lifeboat. Sinking.

There a central irony to this story, so I’ll start with the irony and go from there.

Parents, school advisors, well-meaning friends and family are forever urging kids to get out and get physical. Join a team. Take up a sport. Get some fresh air. Exercise. It’s good for you, right?

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It is good for you. Mostly. But. Youthful athletic activity is often the start of a lifetime of pain. How many young men destroy their knees playing football? How many girls dislocate their spines in gymnastics? How many head injuries happen during little league baseball games? How many broken backs are the result of falling off horses? It’s not rare or unusual.

These days, everyone knows about the dangers, but it doesn’t stop kids from playing or parents from encouraging their involvement. Safety equipment is available, but injuries happen anyhow. Active sports are dangerous. It’s a fact. I’m not suggesting anyone stop playing sports. Life is meant to be lived, risks and all.

The irony is that sports are good for you if you don’t get hurt. If the helmet keeps the baseball from braining you. If getting tackled doesn’t tear the ligaments and tendons in your knees. If you don’t break your ankle coming down from a jump shot. If you ride well, don’t fall and land on your butt … or head.

For me, it was horses. I love horses. I love riding. I didn’t take lessons. I just got on and rode. I fell a few times. It looks funny when you land on your butt. Everyone laughs as you get up and limp back to your mount. You’re young. You suck it up.

Ignoring pain isn’t necessarily good. Pain can mean something is wrong. I dislocated my spine. Repeatedly. Each fall worsened the problem. One day after riding, I noticed my back didn’t hurt. I couldn’t feel much of anything. My back was numb and aside from tingling, so was my right leg. That scared me. I was used to pain. I figured it was part of athletics. No pain, no gain, isn’t that what everyone says? But numbness was new and I figured maybe I should see a doctor.

My spine was 50% displaced and was pressing on my spinal cord. Which accounted for the lack of sensation. If something wasn’t done about it, I was going to be in a wheel chair before I was old enough to vote — 21 back then.

At 19, it hadn’t occurred to me I might have a real problem. In those days, we didn’t run to the doctor for every bang, bruise or pain not because we were tougher, but because we were ignorant. We’re more sophisticated these days but in the early 1960s, no one thought much about sports injures. Kids played hockey, rode bikes and horses, played sandlot baseball. Nobody owned safety equipment. If we had, we’d have been embarrassed to use it. Only a total weenie would wear a helmet on a bicycle. Has that changed or do kids remove their helmets the moment they are out of mom’s sight?

I went to the doctor. He told me to do absolutely nothing until he got me into surgery. I got a second identical opinion. Don’t bend. Don’t lift. Don’t fall. Don’t do anything. I asked if that meant I couldn’t ride. The surgeon looked at me like I had two heads, both stupid. I figured he meant “No.”

My surgeon didn’t enumerate the risks. I doubt it would have made any difference if he had. I wasn’t going through life unable to do anything active. Whatever the risks, I wanted to be repaired. I wanted to ride. At 19, I had a spinal fusion and laminectomy.

The doctor mentioned I might develop some arthritis at the site of the surgery later in life.

“Uh huh,” I said. Later in life was a million years away. After I healed — a two-year process — I went back to riding. I never fell again. I took lessons, a wise move that might have prevented youthful injuries, but my parents were unwilling to pay for lessons. Too frivolous.

Fast forward 47 years, arthritis began to make inroads. I had to stop riding. My doctor explained if I fell, I might not get up. Ever. The fusion had disintegrated. I was glued together by arthritis, nature’s way of keeping my spine intact. When the pain got worse, I went back to my doctor.

“Surely,” I said to him, “you can do something for me.”

“No,” he said. “Pain management. Cortisone shots will help. For a while.”

I’ve been down cortisone road. The shots do help for a few weeks, after which the pain returns. The human spine isn’t engineered for bipeds. Many of us have spinal weaknesses we don’t know about until after we get hurt. When I was young, a bad back was not so common. With the passing of decades, almost everyone I know has some kind of back problem. Unless you are very lucky, the chances you’ve had a back injury are high. So I live with pain and quite possibly, so do you.

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There are a lot of members of the back pain club. After you join the club, you usually get a lifetime membership. I finally discovered I have a problem I can’t fix. No amount of persistence, research, medical attention or cleverness is going to make it go away. So I’ve designed the world to make my back happy. We have a back-friendly home. From our adjustable bed, to the reclining sofa, our place is kind to spines.

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There’s no moral to this story. It’s just life. If you don’t die young and live an active life, you hurt. The years roll on, pain gets worse.

I yearn for a scooter, but the one I want doesn’t exist. I want a scooter that’s an ATV, but weighs like a bicycle and folds up. There is no such thing. I probably couldn’t afford it if it did, but I can dream.

I have had to accept reality but I do not have to like it. Sooner or later we all face an intractable problem or several. It’s a nasty shock if you’ve always believed you are unstoppable. When you hit that wall, I recommend you get some very comfortable furniture.


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If the moccasins pinch, wear them

I just read another post on the power of positive thinking. I was glad to hear again how I can conquer pain and make my problems go away by believing they will.  Does God really reserve his blessing for those with a positive attitude?

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I don’t think there’s a malevolent deity or evil destiny stalking me or anyone else. Life just is. It’s not omens and portents: it’s stuff that happens.

Positive thinking is not bad.  It’s just that positive thinkers have a way of forgetting how suffering people don’t necessarily want a pep talk. They want to be in less, preferably no, pain. They want love, comfort and sympathy. My suggestion? Listen to them, find out what they want and do your best to give it to them. Your positivity may cure your problems and you are welcome to use it to make yourself feel better. Just don’t impose it on me or anyone else. Don’t force people to smile when they want to cry so you can feel okay.

I’ve got more than a few physical problems that are difficult to manage. There are bad days. I want to avoid dragging others down, but I have given up trying to make everyone else feel better by internalizing everything.

It’s unfair to tell people to relax, be happy, smile and that will make everything fine. It’s not true. Internalizing pain and sadness increases stress and makes problems worse. Don’t stop believing, but quit imposing. If you can make your own pain go away by force of will, good for you. In the meantime, remember: only you are you. The rest of us are different. A single solution, attitude or way of thinking does not fit everyone.

It is said you cannot know anyone until you’ve walked in their moccasins. Be careful: those moccasins can pinch something fierce.


17 Comments

Out of action

Usually, I’m aiming for a catchy title, but I have to tell you this is not a catchy title. I really am out of action.

I have a bad back. It’s been a mess since I was a kid falling off one horse too many. It was rebuilt in 1967 — a fusion and laminectomy using saws and chisels — because  that was long before micro surgical techniques.

I'm a four and a half. Apparently that means I'm disable. I sure feel disabled right now.

I’m a four and a half. Apparently that means I’m disabled. I sure feel disabled right now.

I’ve had a lot of problems with my back over the years and the fusion, which was bone paste made from a piece of my hip, began to disintegrate about 25 years ago, to be replaced by a massive invasion and a virtual sheathing of arthritic calcification. That’s not altogether bad. Without the arthritis, I’d literally fall apart.

A couple of weeks ago, after months of bursitis in my hips making it more and more painful and difficult for me to do much of anything, I went to the neurologist in Boston. I had a couple of cortisone shots in my hips that overnight made my it possible for me to walk again. I was thrilled.

A few days later, what had been a nagging pain in my back morphed from something I could ignore, to something that demanded I deal with it. Immediately. For the last couple of days, I’ve spent all my time trying to find anything that would make it stop hurting.

Today, I gave up, took the heating pad and my agonized spine and went to bed where I’ve been all day and will probably return in an hour or two. The way it’s feeling right now, I might be back in bed sooner than that.

I’m quite literally out of action. In the 45 years since my spinal surgery, with all the problems I’ve had, I’ve never been laid out like this. I’ve been in a lot of pain, yes, but somehow, I’ve managed to gut it out. This time, I just can’t. If you don’t hear from me, that’s why.

I know I am far from the only one with back problems, but somehow I thought what with all the rest stuff I’ve gone through, all the medical crises, the uncountable numbers of surgeries, that somehow I was going to manage to miss this particular one. Apparently not. Please accept my apologies. I’ll write when I can sit up long enough without screaming in pain and I mean that literally.

Assuming doctors are back from vacation after New Year‘s, I will seek medical assistance. I’m assured that cortisone in my spine might actually help. I’m pretty desperate and right now, a needle or two in my spine sounds like a great idea.


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Life hurts

My granddaughter and many of her friends are having big problems in high school. Their problems are identical to those of my generation but this generation is even more clueless than we were. They have no idea how to cope. They are like those monkeys raised with wire mothers, at a loss to relate to other monkeys. 

They don’t know the difference between a real friend and a casual acquaintance. The glib labeling from social media is, for them, the real deal … until they discover it’s not.

Becoming a misfit in high school is easy. If you are different, you are going to have social problems. How large these problems loom is a function of the vulnerability of the individual.

In the “good old days” when I was growing up, rumors and lies spread no faster than however long it took to pass the word from person to person. Today, with the click of a mouse on a Facebook page or mobile phone, the same meanness, backbiting and gossip that has always been with us can be distributed instantly to hundreds, thousands, even millions of people. It’s the same stuff, but it gets around faster.

Schools can’t deal with the problem. It’s too amorphous. They can’t control the Internet, text messages, and social media sites. It’s so easy to pick on someone. It doesn’t even have to be intentional.

A moment of pique, thoughtlessness, a casual reference, ordinary gossip can do an enormous amount of damage to a fragile adolescent ego. The electronic world is as real to them … maybe even more real … than traditional relationships. I’m not sure they understand there is a difference.

I’ve watched the dynamics of this first generation of young people for whom cell phones and computers are as ordinary as electricity was for us. I’ve watched them sit together in groups preferring to text each other rather than talk. I’ve wondered how in the world they would ever learn how to have a real relationship, to make the kind of friends that last a lifetime.

The answer is that they haven’t learned. They are lost.

They are starting to pay the price of hiding behind electronic communication. They have used it as a substitute for face time, conversation, of really being with other people.

Shy kids have had no motivation to get over it. They can’t handle even the simplest conversation. They don’t get it that people can be two-faced, dishonest, and just mean and that it isn’t personal. People are what they are. We older people could help if they let us, but we’re fossils, stupid old people suggesting they talk to each other, spend time together, that you can’t become “best friends for life” by exchanging emails.

They’ve relied on words alone, out of context of the rest of the package: facial expression and body language.  They have never learned to “read” people. They can’t see when someone is lying.

Growing up is hard. Being a teenager is rough. It was as true 50 years ago as today, but we never had the choice of hiding behind a computer.

A lot of young people have had only minimal contact with other kids. There are a lot of forces at work, not only the hyper-availability of technology but also the fearfulness parents, the limited availability of free time, the overly structured lives kids have. They can’t just hang out. They aren’t encouraged to do stuff  independently.

If my generation suffered from unwillingness to discipline our kids, this generation of parents not only doesn’t discipline kids, they smother and over-protect them from life itself. They label everything as bullying. They do not encourage their offspring to face problems and assure them they can handle it, that you don’t get emotional strength by avoiding life. Instead they buy into the endless psychobabble and make their kids feel even more helpless.

I’m not surprised at the problems. Despite my son and daughter-in-law’s contention that kids are meaner than they were, I don’t agree. Kid, people, are no different than they ever were.  The difference is that parents are afraid to let their kids work out their problems. They don’t let them grow up. Sometimes, I think they don’t really want them to grow up, as if they want them to stay permanently dependent and childish. They have no idea how much they will regret it.

It’s natural to want to protect your children from hurt, but you shouldn’t protect them from life.

Life hurts. Life is also wonderful, rich, rewarding, exciting. But never pain-free.

There’s no turning back from technology. Nor would most of us want to dump our computers and cell phones. There does need to be a better balance. Technology won’t produce relationships. Exchanging words is not bonding. Sending texts and emails can’t establish closeness.

It’s a tall order convincing teenagers that emotional pain is part of growing up. Nothing but experience will help toughen them up so they can function in the world.

No one gets a pass from pain. Money won’t buy it. Private schools won’t keep life away. There’s only one way to become a survivor — experience. These kids need to get out and live. Put the cell phones away and talk to each other. Get involved. Let life happen to them, be swept away by events and emotions. Learn that feelings are manageable … with practice.

They aren’t getting the message. Maybe if they read it on Facebook?

 

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