BEHAVING RASHLY

I have a rash. It itches. Occasionally it hurts, but mostly it itches so much I’m ready to tear my skin off. Cortisone (or chemical equivalents) help, but nothing cures it. What is it?

I don’t know. I’ve had it for my whole life as did my mother before me. More than 20 million people suffer from itching skin rashes of unknown origins. Most, like mine, come and go with no obvious cause. I have found a couple of natural creams that help and corn starch powder with zinc oxide sometimes helps, too. But mostly, medical science has no significant progress in curing the problem. Whatever it is.

Until a couple of weeks ago, it only attacked areas of my body that are normally covered by clothing. At least I didn’t have to suffer the indignity of answering the time-worn question: “Oh my God, what’s wrong with you?”

Or, the ever-popular: “What the hell is THAT?”

Thank you for sharing your horror at my condition. Recently, my eczema or dermatitis (take your pick, it’s been called both) spread to my right forearm. I admit it’s not pretty, but it isn’t contagious and it won’t kill me. It may, however, drive me insane with the itching.

If it hurt, I could ignore the pain, but itching? Itching blocks all other sensations. All you can think about is how much you’d like to scratch. You know if you start scratching, it will get worse, though sometimes that barely seems possible.

DEALING WITH FRIENDS who have A RASH
  1. Try not to look horrified.
  2. Don’t stare.
  3. Do not let your jaw drop and tongue loll. That is most unattractive.
  4. Do not ask “Doesn’t that bother you?” Of course it bothers him/her/me.

It’s not that I don’t appreciate the concern, but if you look sufficiently awestruck at the rash on my arm, I will feel obliged to give you my entire spiel on rashes, the history of how dermatology has made no advances in treating itching skin conditions.

Eczema or dermatitis “of unknown origin,” also called “contact dermatitis” (contact with what?) is really common. There is a very good chance that you will — at some point in your life — have a rash that itches. It will be red and ugly.

MacArthur-Quote-1

You will have no idea what caused it. Your doctor will have no better idea than you. Over-the-counter cortisone cream won’t help much. The slightly stronger prescription goop from your doctor will help slightly (but not much) more.

Coal tar soap and ointments may also help to lessen the itching while making your skin soft and smooth. I’ve also got several kinds of complex natural creams that include a lot of aloe and more than a dozen other things including bee pollen and generally, this works better than anything else, but sometimes, only the doctor’s stuff works.

It gets better, it gets worse. Washing makes it better or worse and you have to be care what soap you use and how hot the water is. The older I’ve gotten, the more permanent the rash seems to have become. It used to go away for years at a time, but these days, it retreats, but not completely.

If it goes away, but, like General MacArthur, it will return.

The next time someone asks me “What’s that?” I’ll plan to tell them: “Leprosy. Easily controlled by antibiotics.” That should end the conversation pretty fast,

72 thoughts on “BEHAVING RASHLY

  1. I suffer with a whole range of skin conditions – I feel my skin and I are in a very stormy relationship, with the occasional truce! People who don’t suffer will never understand the sheer agony of that itch!! Mir xx

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    • Mine is going into remission — for the moment. It has been in siege mode for almost a year and this is the first time I haven’t felt like tearing my skin off. It’s awful. Agony is as good a description as any I could give. I wish I had a clue as to what triggers it … or what makes it recede. It has a mind of its own.

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      • Glad to hear you’re getting some respite from it. I know what triggers a lot of mine (I suffer with delayed pressure urticaria) but as for the rest of it… no idea! ‘Mind of its own’ is exactly the phrase I used in my own blog about it recently :), funny way to think of skin 🙂

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        • Mine seems to be to some degree seasonal. Shows up in the spring, usually disappears in the winter. But not always and not THIS year. Also, it has decided to appear in a variety of new and exciting formats, one of which I didn’t even recognize as “The Rash.” Until suddenly, it began to really ITCH and I said “OH, hello there.” It attacks scar tissue, but not ONLY scar tissue. It has taken some new and interesting turns recently. And the medical profession seems to have nothing new to offer. Swell.

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          • You highlight another thing that makes it really infuriating – as soon as you get some understanding of how it affects you, it changes it’s mind and does something completely different!

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            • Yes, it is a moving target, able to leap tall building at a single bound. These days, anything that rubs my skin can trigger a reaction, though in one place, it’s a bloody looking rash. In another site, it’s raised welts, things that look just like bug bites, or flat eruptions that look something like severe acne. The number of things that my skin doesn’t like are too numerous to name and I don’t even know what all of them are, since I seem to be able to develop a new reaction for no reason. One develops a very different relationship with elastic when ones skin erupts without warning.

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