“We are made of sterner stuff than most people,” my son said. This was in answer to the question how come we hurt so much and still function. Well, sort of function. I have to admit I’m losing the battle to soldier on and keep saying “I feel just fine, thank you.”
The other day, I bumped into this thing on Facebook.
I got to “The trash goes out more often than you do,” then I broke up. It’s true. The trash goes out at least once a week. I don’t necessarily get out that often. It depends on how things are going.
A lot of us have fibromyalgia. I try not to think about it because there really isn’t much to do about it. I’m taking as much as I can and that’s not much because I have so many other problems. There aren’t many drugs I can take that won’t interact negatively with other things I have to take or conditions I’ve got that are counter-indicative for that med.
Before I take anything, I look it up online. Ninety percent of the time, I can’t take it because I have a history of ulcers, have had a heart valve replacement, have high blood pressure, have a pacemaker … or take some other medication that makes it dangerous and this includes things like aspirin, ibuprofen, and many other over-the-counter medications.
Other stuff which might make me feel better are too expensive — and Medicare won’t pay for them … like asthma medication which now tops $500 a month out-of-pocket. Even a simple inhaler costs $50 with no assistance from insurance. They have decided that I don’t really need to breathe. Like hearing, seeing, and having teeth, breathing is “cosmetic.” You gotta love the system.
So there’s not much for me to do about the fibromyalgia except ignore it. Mostly, that’s what I do. If people ask me how I am doing, I always say “I’m absolutely fine,” because any explanation gets way too complicated. Anyway, a lot of people think fibromyalgia is a fake disease created by malingerers who want those fabulous disability payments.
All of you fellow sufferers out there? I believe you. I know what it feels like when you can’t find a body part that doesn’t hurt and nothing in your big bag o’ meds will help. I know the frustration of making plans, then getting to the day and realizing you aren’t up to it. How, after a while, you realize this is the way it’s going to be.
I’m with you. But then, I laugh. Because life is absurd. The world is insane and so am I. Surely this is a bizarre alternate reality into which I’ve unknowingly slipped. Wake me when it’s better.