“We are made of sterner stuff than most people,” my son said. This was in answer to the question how come we hurt so much and still function. Well, sort of function. I have good days and not so good days, but overall, I’m slowly losing the battle to soldier on. But, I keep saying “I feel just fine, thank you.”

The other day, I bumped into this thing on Facebook.


I got to “The trash goes out more often than you do,” and I broke up. It’s true. The trash goes out at least once a week. I don’t necessarily get out that often. It depends on how things are going. Good weeks, I get out a lot more. Bad week? Barely out at all.

A lot of us have fibromyalgia. I try not to think about it because there isn’t much to do about it. No special drugs to make it go away and anyway, I have so many other issues, even if there were, I probably wouldn’t take them. Everything interacts with everything else, so the less I take, the better. This has nothing to do with how I feel, by the way. I could take a lot more stuff than I do, but I think I’d find I was even more miserable if I did.

Before I take anything, I look it up online. Ninety percent of the time, I can’t take it because I have a history of ulcers, have had a heart valve replacement, have high blood pressure, have a pacemaker … or take some other medication that makes it dangerous and this includes things like aspirin, ibuprofen, and many other over-the-counter medications.

There’s not much for me to do about the fibromyalgia except try to ignore it. Mostly, that’s what I do. If people ask me how I am doing, I always say “I’m absolutely fine,” because any explanation gets way too complicated. Too many people think fibromyalgia is a fake disease created by malingerers who want those fabulous disability payments.

This is probably true of most chronic problems. People who don’t have one or two of their own simply don’t get it. But, I believe you. I know how it feels like when you can’t find a body part that doesn’t hurt and nothing in your big bag o’ meds will help. I know the frustration of making plans, then getting to the day and realizing you aren’t up to it. How, after a while, you realize this is the way it’s going to be.

Finally, I have to laugh. Life is absurd. The world is nuts and so am I. Surely this world is a bizarre alternate reality into which I’ve unknowingly slipped. Wake me when things improve.

Categories: #Health, Humor, Medical, Personal

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24 replies

  1. im so glad i found you. thank you so much. i have been diagnosed with fibromyalgia and im still in the mourning my old abilities to do stuff stage. my go to response is also ‘im fine thank you’ its too damn complicated to explain otherwise!!


    • It IS complicated. Anything that’s chronic and also comes and goes … and for which there’s not specific “germ” or test … or for that matter, medication … makes many people think it must be fake. It isn’t fake, but unless you live with some kind of chronic illness, it is hard to explain. I’m just glad we’ve got computers and other things we can use when we are too tired to do what we used to do!

      Liked by 1 person

  2. Love your last line. Oh so true!!!!


  3. And they want to extend our life span to 120 years. Now that is some pie in the sky.


  4. I like your style, Marilyn.


  5. The trash and the dishes comment got me… if I didn’t have to work or walk the dog… I would go out far less than the trash…


    • I think we do what we must, then we try to do what we would like to do. There are a lot of social events that are for me, kind of cuspy. I wouldn’t mind going, but my heart won’t break if I don’t and to them I mostly don’t go. When it’s full winter here, I go out very little. It’s the ice and slippery sidewalks.

      I really CAN’T fall again. If I didn’t take pictures, I might stay in most of the time, so I’m glad I have some reason to push myself to get out sometimes. But it is hard. Sometimes, I look at a walk and seriously wonder if I’m going to lay down in the parking lot and take a nap!


  6. There are not so good days and worse days. Having a health problem that is not just going to get better is a burden. You have to live with it and put on a brave face, but would so like to be without it ruling your life.


    • It’s the “not going to get better” that people who DON’T have problems simply don’t get. They keep asking you if you are better and I’ve given up trying to make them understand that some things don’t get better, but if we are lucky, they don’t get a lot worse — or get worse very slowly. I think there are a lot of people who refuse to accept it and I can’t be bothered to argue with them, so I smile and say I’M FINE. That’s what they want to hear anyway.

      Liked by 2 people

  7. I reckon i’d have about 1 in 3, moving towards 1 in 2. 😉

    I figure it this way.. the more you struggle to get through this life, the better you’ll enjoy the next stage.

    One day you can look back on all this – and Laugh! 😀


    Liked by 1 person

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