I think of myself as a strong, healthy person. When I think about it at all. I’ve had periods in my life when I wasn’t healthy, but that was way in the past. Healthy is my reality now. I’m not athletic, but I can do what I want, when I want to. At least I could until four months ago.
Suddenly I started getting stiffness and pain that would come and go randomly. Then the episodes started getting longer and the stiffness and pain were accompanied by weakness and fatigue. Now I get these several times a week at random times and for varying durations.
The weird part is that on days when I don’t have symptoms, I’m absolutely fine. Totally normal. No sign of any problem whatever. This is making me psychizophrenic.
I went to a rheumatologist who diagnosed me with Poly Rheumatic and Fibromyalgia. I’ve been put on medication. But apparently these conditions get better very slowly. I’ve read and been told that a year is not uncommon to suffer before you go back to normal.
I’m going for a second opinion.
But in the meantime, my life has been turned upside down. It’s hard to plan anything because I never know how I’ll feel on any given day or night.
Did I mention that I can’t take much Ibuprofen for the pain? And unfortunately, that is the only thing that helps me weather my episodes. I donated a kidney to my son so I have to be very protective of the one I have left. Anti-inflammatories, like Ibuprofen, are bad for the kidneys. So I can only use them very sparingly. This means that I’m screwed.
So I’m left in this nether world between healthy sometimes and debilitated the rest of the time. It’s doing a number on me psychologically. On bad days, I feel old and decrepit. No energy and no motivation. Then I bounce back to my chipper, active self. But even then, I know that my good health is not going to last long.
This experience has emphasized for me the interconnections between body and mind. When my body is healthy, my mind can stay upbeat and positive. When my body is struggling, so does my mind.
I’ve also been thinking a lot about people who live with chronic pain and/or discomfort from a wide variety of medical conditions. I have a new respect for people who manage to deal with permanent disabilities or illnesses and still manage to lead fulfilling lives and maintain positive attitudes. I’m not sure if I could do it. I’m struggling with sporadic issues I’ve had for only four months!
If this is going to go on for seven or eight more months, I’m going to have to put my big girl panties on and get my psych back in fighting mode. I’m going to have to power through the bad days and make the best of the good days. Do what I can when I can and accept what I can’t do when I can’t. This is my version of the serenity prayer. I hope it works for me.