So what have I been doing with myself? It certainly hasn’t been creative writing or photography. Mostly, it has been medical. Yesterday, I spent the day with the valve specialist and got the best news of the month. My heart is doing well, exceptionally well considering how bad it was when they worked on it five years ago. It’s pumping, the valve is working like a new valve should. My bypass is open and moving and the pacemaker is working fine.
I wanted to know why I am so exhausted and he said whatever it is, it’s NOT your heart because that’s fine. Which brings me back to arthritis and my spine. It’s the same old story which, I guess, will never end. I frequently need to remind myself that no matter how miserable my busted spine and arthritis make me feel, they are not going to kill me. Also, the rest of the exhaustion probably is the fibromyalgia which is acting up for no known reason.
That’s the thing about fibro. There’s never a reason why it does what it does. There are no tests for it, no medication that works. You can’t even get a proper diagnosis because there isn’t any except the intuition of your doctor. There’s a definite link between arthritis and fibro … as well as rheumatoid arthritis and Lupus. But what the link is, exactly, no one knows.
It’s hard to diagnose and essentially impossible to treat. Nothing seems to make it better, but a lot of stuff can make it worse.
To keep myself functional, I’ve been trying to get more sleep, to not push myself when I’m already tired … and keep my feet up because the swelling in my feet and ankles is apparently a side-effect of one of the blood pressure medications I take. And no, I can’t change medications because these are working really well and when the meds are working, you don’t change them so your ankles will look better.
I did want to know if there was any chance I could get a more modern pacemaker. Mind you, they have not improved the functionality of the pacemaker. They are still exactly the same. What they are improving are the cases, making them thinner, non-magnetic and more appropriate for a woman’s body. Mine is so big I can feel the wires.
But changing pacemakers isn’t a minor thing. It’s a life-endangering issue, so unless it stops working, I keep this one. With this one — which is magnetic — I can’t have an MRI. I hope I don’t need one!
Despite the downers, most of the news is good. Mainly, my heart is working and my son is lucky he didn’t inherit it.
Other stuff? We’re now in the pricing new gutters for the house. The ones we have were improperly installed and have never worked. I’ve known that for more than 15 years, but it never occurred to me that a lot of the rot on the house is because of those non-working gutters.
LeafGuard wanted more than $7000 for new ones. $7000? Seriously?
The actual real-life prices are closer to $1100 to $1400, which I think we can manage. The back door will have to wait for warm weather to come around again, but if I can get the gutters up before winter, we might be saved from the giant ice dams of winter and a lot less rot!
If you live in a warm climate, you might not know that one of those big ice dams can weigh hundreds of pounds. If one clunks you on the head, you might not wake up. We had a friend die of a falling ice dam and he was born and raised around here, so he knew better. There’s something irresistible about trying to knock down those ice dams. It’s stupid and damages your roof, but people still do it.
I’m still trying to decide whether or not to change insurance providers. Tufts, the most popular (with good reason) has none of our doctors in its plan, so they are out. That leaves Blue Cross (which we have) or HarvardPilgrim. Both are good. Blue Cross is a little bit less money but offers fewer other “advantages. Harvard Pilgrim pays you for more of your tooth stuff and also for eyeglasses. Also, they actually will pay for inhalers.
But if I change plans, we get into trying to move my medical records. This ought not to be such a big deal, but because every hospital and medical group has its own plan and its own software and doesn’t mesh with anything else. When you’ve had a lot of surgery and transplants and all that stuff, you wind up with pounds of records. I have a crate full of my medical records which I keep in the car because who know who will want to see them? And there’s a lot of stuff NOT in there, too. All the information from when I lived in Israel and before that, in New York (before computers, too). So much stuff, I don’t remember a lot of it.
I’m thinking about it. Not an easy decision.
On one side of our loveseat, there are three tables. One holds a very small lamp that’s almost always on. The middle one used to be part of my bedroom set, but moved to the living room when it didn’t fit in the bedroom. It’s really ugly, one handle is missing, and it’s covered with bills that need paying, others that need filing, miscellaneous odds and ends for which I have no “home” –my extra eyeglasses and all the paperwork for medical plans I am fully intending to read. Any day now.
The final table is empty. That’s where I put my computer. I have a lapdesk to work on, but when I move the computer, that is its home. It’s an old piece and if I refinished it, it might actually be quite nice, but right now, it’s just old and worn out.
To find an affordable table that’s 48 inches long, about 16 or 17 inches deep and standard table height has turned out to be a challenge. I think I’ll wait until spring and do yard sales when everyone is trying to get rid of their old stuff.
For reasons I find incomprehensible, everyone is selling “retro” television platforms that are exactly the right size. The problem is, these were ugly when they first came out. I’m betting they’ve been warehoused since the mid-fifties and someone said: “Hey, let’s make some more money, call them “retro” and sell them now. Retro is very “in” these days, right?” They are truly unattractive.
If that’s my choice, what I’ve got is already unattractive — and I own it, so it’s free. If ugly is what is available, I guess that’s the way it’ll be. These are the days when I wish I had some carpentry skills. I could just build a box of the right size, throw a cover over it and VOILA!
Maybe a few wooden crates?
Categories: #Health, #News, Arthritis, Heart, Home, Marilyn Armstrong, Uxbridge
This is a good, happy report!
The long and short of it is good news, Marilyn.
Basically, yes. The fibro will come and go, but my heart is fine and so far, no indication of any return of cancer. Everything else was nonlethal, so whatever happens, it won’t kill me. I’ll probably die at age 100 getting run over by a beer truck.
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It’s that lethal stuff to worry about and since that is okay – very good news….
I think a dodgy gutter was the cause of most of the damp problems at the front of my house. We had a bad case of mould on the bedroom ceiling. Once it had been replaced and the mould cleaned up it never came back.
That’s what I’ve been told. I wish someone had told me 19 years ago!!!
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I remember my dad having a pacemaker. He got it when he was 90 years old and I could see it as a sort of square bump. He managed 10 years with it and never had a problem.
They last between 10 and 12 years on one battery. You have to wonder how come NOTHING else lasts that long on a battery. Mine has lasted five and has maybe two more to go. It must have something to do with how much effort it needs to make your heart pump. Mine is thickened … that’s what Cardiomyopathy IS, basically. And it is genetic. Oddly, it may never have any effect on you. You can live a perfectly normal life and never know you have it … or die at age 15 from playing volleyball.
(See “Determining the etiology and severity of heart failure or cardiomyopathy” and “Causes of dilated cardiomyopathy” and “Idiopathic restrictive cardiomyopathy” and “Arrhythmogenic right ventricular cardiomyopathy: Anatomy, histology, and clinical manifestations” and “Hypertrophic cardiomyopathy: Clinical manifestations, diagnosis, and evaluation”.) My father probably had it, but he was never tested for it — it requires different testing than other heart issues. But he was fine with it anyway and if I had been a bit luckier, it wouldn’t have bothered me, either. Some of us just get luckier than others.