I was sure that the damage to my heart was related to the drugs they gave me for cancer which had been dealt with just four years earlier.
Tonight, on CBS News, they are finding a direct link between breast cancer and cardiomyopathy. The wrong chemo, an incorrect amount of radiation, the wrong drugs and what has kept them from making the connection before was that the heart damage often doesn’t show up for years following cancer … as long as a decade. My time was 4 years.
I had been saying to other people I know who are having heart issues … specifically myopathy … involving damaged valves and thickened ventricle walls which make pumping more (and more) inefficient who also — earlier — had cancer. Asking them if they think the treatment they got for cancer may have been the starting point for their heart issues. The answer is a long pause and “I don’t know. I always wonder about that.”
I have always said that the problem is that we are not pieces that you put together like a jigsaw puzzle. Everything is connected to everything else. I’m sure of it and no, I don’t have statistics to prove it. It takes dozens of years for these stats to finally be proven, but you know. You are just sure, but you’re not a medical professional and you don’t have the facilities to run the tests.
I did put the idea to my oncologist and all three of my cardiologists. While no one would confirm my feeling that these issues were not separated, they were also unwilling to tell me “no way, can’t happen.” Because they see how many people who have previously had cancer show up with cardiomyopathy. You don’t necessarily need years of testing to spot a trend.
Meanwhile, as more of us sense the increasing tendency of the medical community to use smaller specialization, the rest of us are sensing this approach is inconsistent with reality as we feel it.
I can’t prove it, but I believe it. Doctors need to look at us as a unit. They need to look at all of our working parts. Not just look at our hips without making sure the spine is functioning. To not look at one’s hands without understanding how the wrist is coping or for that matter, the shoulder and elbow.
It is incredibly frustrating to know in your gut that there’s something important happening in your body, but no one is LOOKING at your whole body.