SHARING MY WORLD – MARCH 2018

Share Your World – March 5, 2018

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The other night I had a seizure or something pretty remarkably like one. It isn’t the first time this has happened to me — nor is it the first time I’ve tried to discover why. I’ve had several sound theories, but none of them has been correct. Garry wasn’t going to let this one slide and I can’t blame him. I think I scared him half to death and I found it pretty scary too.

My doctor booked me for an EEG on the 15th. It has been a few years, so maybe they know something now they didn’t know last time. I’ll see.

What did you or did not like about the first place you lived without your parents?

Wow. Talk about a blast from the past! The first place I lived away from home was a room in a little house in Hempstead or maybe it was East Meadow. Near Hofstra University, which at this point didn’t have its own dormitories. It would a decade later and by then, I had graduated — and was also married.

It was a house just like this, but with less land.

What did I like about it? It wasn’t with my parents. Anything away from “home” was great. Also, no one cared who you brought home or basically about anything except whether or not you paid the rent. There was no one watching you, reporting about you, or keeping tabs on you.

We had fun. It was an old, dinky house, but we played music, laughed, and every night was a little party. It was the way dorms are supposed to be but generally aren’t.

What is your most favorite smell/scent?

Vanilla or cinnamon.

Would you prefer snowy winters, or not, and why?

I want snow twice each winter and never on New Year’s Eve because the drunks driving on snow die in heaps of twisted metal.

The gate, the dog, the blizzard

Not that I will be one of them because we have long since stopped doing anything on New Year’s Eve other than watching movies and giving each other a kiss when the ball drops in Times Square.

Snowy day

I want each snow to last 24 hours, then melt cleanly away. No ice. No pile-up on the roof. No need for $50 for each plowing of the driveway.

What did you appreciate or what made you smile this past week?

Feel free to use a quote, a photo, a story, or even a combination. 

Reading “Lord of the Rings” has reminded me of all the other times I read it. How much I love the books.  How the first time I read it was a couple of months following my spine surgery in 1967. I was in the hospital for 5 months and I read everything I could get my hands on. Which included “Lord of the Rings.”

These books opened a whole new world of literature for me.



Categories: #Photography, Books

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34 replies

  1. I just Googled grand mal/ petit mal. There are so many things it could be. Best to get it looked after.

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  2. A lovely interesting look at the personal you. Honest and real. Loved it! Sorry to hear you had an unexplained seizure. Seriously hope it’s nothing serious!

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  3. It must be scary to be that out of control? And have no idea why? I hope you get some answers the are satisfactory to you. Take care of yourself.

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    • I might, but I also might not. If it is something that leaves any kind of trace, maybe. So many neuro things go away leaving nothing behind. It might be a type of epilepsy that has become traceable and wasn’t 5 years ago. It might be one of those mini strokes, but I don’t think so. I still think that is is one of those extremely complex types of migraine because I have all those aura symptons, but often, no headache. I have days when i can’t see properly because there are lights in yellow and orange floating around and blocking my vision. Makes photography a bit dicey, too, which is one reason i have not felt much like going shooting. I will find out. It’s certainly time to try to track it down again. They have learned a bit since last time around, so I hope so. I have one good friend who has bouts with this too and she has never learned what it is. There are medications that help, but no cure for the unknown whatever.

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    • Cee, I didn’t panick but I didn’t know what to do. I had to ditch the headset worn watching TV, quickly put in my hearing aids and get a handle on things. All in a blur of minutes. Not pretty.

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  4. Wow, it does sound scary. I hope they find out what’s going on.

    I need to reread TLotR sometime. I used to read it at least once a year, sometimes twice. I think I knew every word 😉 But it has been over 20 years since the last time I read it. Getting close to time for a reread.

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    • If you have time, try it in the Audiobook version. Ron Inglis is the reader and he was (it was recorded more than 20 years ago) brilliant. I have moved past Helms Deep and heading. We will soon be finished with the Ents and moving on. I may have to go back and reread all of the first part of this book. For a birthday present (Sunday), I bought an updated, blueray full extended edition and Garry promised to watch it with me. He watched them before. They may have been the ONLY movies we went to see on opening day. He loved them. It’s just the length that has him dubious. I pointed out that here, at least — we have bathrooms and a pause button 😀

      We need to bring back “Fall of Sauron” day. That was on GREAT party. Except no one drinks anymore. I’m not sure fresh apple cider would do it. Maybe pipe weed. Locally grown? i still have the scripts i wrote in the 1960s when i could still write in Elvish.

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      • Fall of Sauron Day sounds like a great time for a party. Not too far off, so you need to start planning soon….

        I’ve never done an Audiobook. I guess it would have been good this last week since I was in the car quite a bit, driving back and forth to the Cape. For the most part, I can’t see myslef sitting and listening. I get too ADHD to watch TV and have a hard time with movies. My brain has to be active, which it is with reading.

        I did like the movies, though was a bit disappointed from how far the the second two strayed from the books after the first one was so faithful.

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        • I think they had an issue with Boromir and some script issues with Rohan. The deviation began with the very altered departure of Boromir. Our problem with The Party is that we are so scattered these days. Just Tom and I are still within driving distance. Ben is in Arizona … and we’ve lost touch with most of the others — and a handful have crossed the sea in solemn ships. I actually brought it up last year, but the organizational issues were bigger than our interest in a party, so we have stuck with the memories.

          Audiobooks saved my life while I was commuting. I don’t know I would have survived my last dozen years in the workforce without them. They made those long drives interesting and sometimes, I’d find myself at work, still sitting and listening because I needed to hear the end of a chapter. I am also a two-tasker. I can listen to an audio book and do other things as long as they don’t involve reading or writing. Visual stuff lets me process the words, so I often use audiobook time to process photographs and sometimes, play games.

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  5. Take care, Marilyn. I hope the doctors can come up with a solution.
    Lovely photos and memories❤

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    • Thank you. I hope they find something. I’ve gone down this road a few times before and learned absolutely nothing except “something happened.” Actually, I got really good information which is “When you feel that way, get down on the floor. You can’t fall off the floor.” Sometimes, i don’t even have enough time to do that, but occasionally, it has saved my butt too.

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  6. Hope you can get sorted out, Marilyn. That must be very scary for both of you.

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    • Yes scary, but it happens relatively rarely. This isn’t something that comes up monthly or weekly … or sometimes, at all for a year. But it does happen and there’s never any explainable reason why. It’s possible I am still not going to learn anything more because not everything leaves information to find. I’m hoping there may be a memory in my pacemaker. I’m getting it “read” in a couple of weeks and it might have some information, IF this affected my heart at all. It might be all neuro, in which case there may be nothing to find. There are so many things that can happen in your head and leave nothing behind.

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  7. I hope the docs can find out what’s going on and get it fixed, because that sounds pretty scary. Get better!

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    • It was scary and I’m getting a bit old for this stuff. It may be a kind of epilepsy or some weird thing involving optic nerves and migraines. It’s really hard to figure out what causes them. If it were easy, I’d already know what it is. New tests, worth a try.

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    • Squirrel, it was a VERY scary “episode”.

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  8. So sad to hear about your seizure. Can you tell me a bit more about it? Please let us know your results asap. Glad you are having tests. Take care of yourself. xo

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    • It’s not the first time. This has been an occasional thing for at least 25 years and I’ve never been able to figure out what causes them. This was scary so I have to at least try to find out what’s doing this. The problem is that many of the things that cause seizures disappear within minutes after they cause the problem and there’s nothing to find. But — they know more than they did the last time this came around, so I guess we’ll see. It’s scary when it happens, but then it just vanishes.

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      • What does happen when you have one?

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        • I get very dizzy and I can’t see or talk and have trouble breathing. If I’m standing, I fall. Fortunately, I was sitting. I lose consciousness for a few seconds and apparently scream a lot. Scared the hell out of the dogs and Garry. Ten minutes later, it’s gone like it never happened.

          If Garry hadn’t been there, I’d wonder if it happened at all. I have fallen and really broken my face at least once. It happened while i was driving and I hit a tree. I don’t get any warning, either. I’m fine, then i’m not, then I’m fine. The car got really banged up. it’s a big reason I don’t want to drive. Once was more than enough. And then you get to the hospital and if you TELL them you seized, they confiscate your license.

          I don’t drive much, but if something happens to Garry, I need to know I can get him to the hospital. it has gotten worse as I’ve gotten older. There are dozens of possible things it could be and that’s one of the problems.

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          • If Garry needs to get to the hospital, can you call an ambulance or friend? Stress may compound your chances. So sorryl Health is almost all at this point.

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            • Yes, if it’s an emergency. Not so easily if he needs transport and it isn’t an emergency. It’s not that I don’t remember how or can’t … but I’m very uneasy behind the wheel. Hitting that tree was a serious and frightening reminder of how FAST you can go from a slow country drive to an ambulance. I don’t think I was “out” for more than 2 or 3 second at the most. But even at 25mph, it was long enough to hit the trees and totally have NO memory of what happened. This was one of these cases where the truth was definitely NOT going to set me free!

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          • Oh Marilyn, you really shouldn’t drive.

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      • Your “episode” was VERY scary. I hope we get some clear answers.

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